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	<title>Comments on: Appeal for Abu Sinan&#8217;s autistic son</title>
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	<link>http://www.blogistan.co.uk/blog/mt.php/2009/10/14/abu_sinan_appeal</link>
	<description>Politics, tech and media issues from a Muslim perspective</description>
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		<title>By: Yakouh</title>
		<link>http://www.blogistan.co.uk/blog/mt.php/2009/10/14/abu_sinan_appeal#comment-16531</link>
		<dc:creator>Yakouh</dc:creator>
		<pubDate>Sat, 24 Oct 2009 10:31:54 +0000</pubDate>
		<guid isPermaLink="false">http://www.blogistan.co.uk/blog/?p=2161#comment-16531</guid>
		<description>Sorry to pour a big bucket of cold water on this, but I doubt whether these medical tests are necessary.  As far as I am aware, they are not standard in the UK - such tests would probably only be requested where autism was thought to be linked to an additional medical condition. 

ABA is a big money spinner, and somewhat cultish, in my view. Despite being endorsed by the government in the US, it&#039;s long-term efficacy is contested. It&#039;s empirical claims tend to bipass children who regress after treatment stops - i.e. children at the lower end of the spectrum. There are other therapeutic and educational approaches which can have a significant impact on quality of life of children with autism (rather than just &#039;integration&#039;, as per ABA). Son-Rise is one - although that&#039;s not cheap, either. There is less empirical evidence to support Son-Rise, but the anecdotal evidence that it improves quality of life for both child and parents is substantial and compelling. A similar approach - intensive interaction - is more accessible, and may be similarly suitable for children with profound autism.

There is NOT a single approach in either education or therapy that is suitable for even MOST children with autism, never mind all. Find the approach that suits your child - it may be ABA. Listen to professionals, but remember, the experts on the individual child are the parents. 

In short, I recommend research before committing to anything or forking out cash. And be very careful - autism has a long history of charlatans promising the earth. Facilitated Communication and Holding therapy are just two examples of approaches that have fooled many, only to be latter rubbished.</description>
		<content:encoded><![CDATA[<p>Sorry to pour a big bucket of cold water on this, but I doubt whether these medical tests are necessary.  As far as I am aware, they are not standard in the UK - such tests would probably only be requested where autism was thought to be linked to an additional medical condition. </p>

<p>ABA is a big money spinner, and somewhat cultish, in my view. Despite being endorsed by the government in the US, it&#8217;s long-term efficacy is contested. It&#8217;s empirical claims tend to bipass children who regress after treatment stops - i.e. children at the lower end of the spectrum. There are other therapeutic and educational approaches which can have a significant impact on quality of life of children with autism (rather than just &#8216;integration&#8217;, as per ABA). Son-Rise is one - although that&#8217;s not cheap, either. There is less empirical evidence to support Son-Rise, but the anecdotal evidence that it improves quality of life for both child and parents is substantial and compelling. A similar approach - intensive interaction - is more accessible, and may be similarly suitable for children with profound autism.</p>

<p>There is NOT a single approach in either education or therapy that is suitable for even MOST children with autism, never mind all. Find the approach that suits your child - it may be ABA. Listen to professionals, but remember, the experts on the individual child are the parents. </p>

<p>In short, I recommend research before committing to anything or forking out cash. And be very careful - autism has a long history of charlatans promising the earth. Facilitated Communication and Holding therapy are just two examples of approaches that have fooled many, only to be latter rubbished.</p>
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		<title>By: Codf1977</title>
		<link>http://www.blogistan.co.uk/blog/mt.php/2009/10/14/abu_sinan_appeal#comment-16117</link>
		<dc:creator>Codf1977</dc:creator>
		<pubDate>Thu, 15 Oct 2009 11:14:38 +0000</pubDate>
		<guid isPermaLink="false">http://www.blogistan.co.uk/blog/?p=2161#comment-16117</guid>
		<description>The problem with US health care is, to be blunt, indicative the whole US political system.  It end&#039;s up serving the special interests of those that have the money to lobby for their corner.  The current heath care providers are happy with the system, they make profits on similar scales to the financial industry and they don&#039;t want that to change so they can afford to lobby members of the House and Senate - doing so by giving large amounts of money to their re-election campaigns.</description>
		<content:encoded><![CDATA[<p>The problem with US health care is, to be blunt, indicative the whole US political system.  It end&#8217;s up serving the special interests of those that have the money to lobby for their corner.  The current heath care providers are happy with the system, they make profits on similar scales to the financial industry and they don&#8217;t want that to change so they can afford to lobby members of the House and Senate - doing so by giving large amounts of money to their re-election campaigns.</p>
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		<title>By: sabiwabi</title>
		<link>http://www.blogistan.co.uk/blog/mt.php/2009/10/14/abu_sinan_appeal#comment-16084</link>
		<dc:creator>sabiwabi</dc:creator>
		<pubDate>Wed, 14 Oct 2009 16:14:26 +0000</pubDate>
		<guid isPermaLink="false">http://www.blogistan.co.uk/blog/?p=2161#comment-16084</guid>
		<description>They actually have tried that route, Codf1977.  Maybe you&#039;ll take a look at this and realize what average, everyday people in the States have to do to try and get the point across to government. 

http://theloudounproject.ning.com/  

If you&#039;re on Wall Street, you get a bailout.  If you an honest, hardworking, tax paying citizen, you get nothing.</description>
		<content:encoded><![CDATA[<p>They actually have tried that route, Codf1977.  Maybe you&#8217;ll take a look at this and realize what average, everyday people in the States have to do to try and get the point across to government. </p>

<p><a href="http://theloudounproject.ning.com/">http://theloudounproject.ning.com/</a>  </p>

<p>If you&#8217;re on Wall Street, you get a bailout.  If you an honest, hardworking, tax paying citizen, you get nothing.</p>
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		<title>By: Dynamite Soul</title>
		<link>http://www.blogistan.co.uk/blog/mt.php/2009/10/14/abu_sinan_appeal#comment-16083</link>
		<dc:creator>Dynamite Soul</dc:creator>
		<pubDate>Wed, 14 Oct 2009 15:32:36 +0000</pubDate>
		<guid isPermaLink="false">http://www.blogistan.co.uk/blog/?p=2161#comment-16083</guid>
		<description>Codf1977, there is no reason why both asking for assistance, and writing Congress can&#039;t be done. If you were a parent watching as your child suffered, you would do everything you could to help them.


Also, if you really want to express sympathy, never end it with a &quot;but&quot;, because it negates every bit of sympathy you thought you were expressing.

Best</description>
		<content:encoded><![CDATA[<p>Codf1977, there is no reason why both asking for assistance, and writing Congress can&#8217;t be done. If you were a parent watching as your child suffered, you would do everything you could to help them.</p>

<p>Also, if you really want to express sympathy, never end it with a &#8220;but&#8221;, because it negates every bit of sympathy you thought you were expressing.</p>

<p>Best</p>
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		<title>By: Codf1977</title>
		<link>http://www.blogistan.co.uk/blog/mt.php/2009/10/14/abu_sinan_appeal#comment-16078</link>
		<dc:creator>Codf1977</dc:creator>
		<pubDate>Wed, 14 Oct 2009 14:32:18 +0000</pubDate>
		<guid isPermaLink="false">http://www.blogistan.co.uk/blog/?p=2161#comment-16078</guid>
		<description>Rather than asking for money, would their time better be spent writing to the 435 members of the United States House of Representatives and the 100 members of the United States Senate to get them to pass Health Care Reform ?

Don&#039;t get me wrong I sympathise with the plight, but if others from around the world keep sending money to the US what incentive do they have to pass reform.

The US spends more on heath care per head of population than any other country and a higher proportion of their GDP than any other country yet they don&#039;t have universal coverage - go figure!</description>
		<content:encoded><![CDATA[<p>Rather than asking for money, would their time better be spent writing to the 435 members of the United States House of Representatives and the 100 members of the United States Senate to get them to pass Health Care Reform ?</p>

<p>Don&#8217;t get me wrong I sympathise with the plight, but if others from around the world keep sending money to the US what incentive do they have to pass reform.</p>

<p>The US spends more on heath care per head of population than any other country and a higher proportion of their GDP than any other country yet they don&#8217;t have universal coverage - go figure!</p>
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		<title>By: iMuslim</title>
		<link>http://www.blogistan.co.uk/blog/mt.php/2009/10/14/abu_sinan_appeal#comment-16077</link>
		<dc:creator>iMuslim</dc:creator>
		<pubDate>Wed, 14 Oct 2009 13:48:11 +0000</pubDate>
		<guid isPermaLink="false">http://www.blogistan.co.uk/blog/?p=2161#comment-16077</guid>
		<description>FYI, the &lt;a href=&quot;http://www.baseera.co.uk&quot; rel=&quot;nofollow&quot;&gt;Baseera Institute&lt;/a&gt; (school teaching Islam &amp; Quran to the blind) is holding a fundraising dinner this coming Saturday, insha&#039;Allah. 5pm, LMC, Whitechapel. More details on their website.
.-= iMuslim´s last blog ..&lt;a href=&quot;http://feedproxy.google.com/~r/Imuslimtv/~3/jSq-3NnFm0A/&quot; rel=&quot;nofollow&quot;&gt;And She Gets Back Up&lt;/a&gt; =-.</description>
		<content:encoded><![CDATA[<p>FYI, the <a href="http://www.baseera.co.uk">Baseera Institute</a> (school teaching Islam &amp; Quran to the blind) is holding a fundraising dinner this coming Saturday, insha&#8217;Allah. 5pm, LMC, Whitechapel. More details on their website.
.-= iMuslim´s last blog ..<a href="http://feedproxy.google.com/~r/Imuslimtv/~3/jSq-3NnFm0A/">And She Gets Back Up</a> =-.</p>
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		<title>By: sabiwabi</title>
		<link>http://www.blogistan.co.uk/blog/mt.php/2009/10/14/abu_sinan_appeal#comment-16076</link>
		<dc:creator>sabiwabi</dc:creator>
		<pubDate>Wed, 14 Oct 2009 13:39:18 +0000</pubDate>
		<guid isPermaLink="false">http://www.blogistan.co.uk/blog/?p=2161#comment-16076</guid>
		<description>Thanks for linking to this Yusuf.</description>
		<content:encoded><![CDATA[<p>Thanks for linking to this Yusuf.</p>
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