Category Archives: M.E.

Unidentified Chronic Fatigue Syndrome/myalgic encephalomyelitis (CFS/ME) is a major cause of school absence: surveillance outcomes from school-based clinics (at BMJ Open) This morning several news sources reported that a study had been published by BMJ Open (the open-access section of … Continue reading →

In July 2011, a new set of criteria for diagnosing ME were published, under the authorship of most of the major researchers involved in the ME or “CFS” field (Byron Hyde is absent, however). It is based on the former … Continue reading →

Last week, the University of Bristol published a study partly funded by Action for ME which highlighted the economic cost of ME and “Chronic Fatigue Syndrome” (more accurately, the cost of illness to service users at NHS ME and chronic … Continue reading →

Yesterday it was announced that the Whittemore-Peterson Institute in Reno, Nevada had won a long-running campaign for a $100,000 grant from the Vivint home security company (formerly APX Alarm) called the Vivint Gives Back Project. The overall winner was the … Continue reading →

On Friday morning, the BBC’s Radio 4 ran a feature on the supposed intimidation of scientists working on “chronic fatigue syndrome, also called ME” which is claimed to be driving people away from researching the field, and it featured interviews … Continue reading →

Acting up: is hysteria all in the mind? | Life and style | The Guardian Asti Hustvedt has written a large book on the “celebrity” hysterics of 19th-century Paris, whose doctor, Jean-Martin Charcot, paraded them before packed lecture theatre audiences … Continue reading →

This is a trailer for Voices from the Shadows, a film about severe ME by Natalie Boulton, who edited the book Lost Voices (reviewed by me here), and her son Josh Biggs (her daughter, Anna Biggs, has severe ME herself … Continue reading →

I know, ME Awareness week was a couple of weeks ago and work took too much out of me back then. However, the month ends in just under two hours (British time) and I did want to post some links … Continue reading →

This article is an open letter by Emily Collingridge (right), who is best known as the author of Severe ME/CFS: A Guide to Living, a guide for patients and those involved in caring for them to the various aspects of … Continue reading →

I’ve seriously injured a patient — head of nursing at University of Ottawa — because she insisted on the Graded Exercise Therapy programme. We put her in the physiotherapy hospital, which is a great hospital; we put her through a … Continue reading →

This post is part of Blogging Against Disablism Day 2011. I was originally inspired to write this post when I saw Eamonn Holmes’s bumbling performance while interviewing Kay Gilderdale, whose daughter Lynn committed suicide (with some help from her) after … Continue reading →