Why some people find the “mong” joke funny (and some don’t)

Ricky Gervais on stage in 2007, doing an impression of an ME suffererThis past week, Ricky Gervais offended an awful lot of people with a joke about a “mong face” on Twitter. “Mong”, for those who still don’t know, originally meant someone with Down’s syndrome, back when the term for the condition was “Mongolism”, which people from Mongolia took some umbrage to (or perhaps people realised that it kept getting shortened to “mong” which came to be used as a general term of abuse, particularly for any disabled people). He was taken to task about this by a number of people, notably Richard Herring who eventually wrote this blog article after receiving hundreds of hateful tweets from Gervais’s fans; disability rights campaigner Nicky Clark wrote this piece for the Guardian, and eventually had an exchange of tweets with Gervais himself, recorded on her blog here, in which Ricky seems to have wised up to the fact that he got it wrong (having previously claimed that those who were against him were just envious of his success). I’m not sure how convinced I am by his apology, because he has done this in the past.

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Posted in Disability | 1 Comment

PCC throws out complaints over ME reporting

Edited version of the Press Complaints Commission's logo, "Fast, Free and Fair", with the latter word partially rubbed outOver the past summer, a number of newspapers and broadcast outlets claimed that some so-called ME researchers had been receiving death threats from so-called militant ME sufferers, such that some had abandoned the field, in one case claiming he found it safer working with the armed forces in Iraq and Afghanistan than with ME patients in London. Accusations were made that the “militants” attacked researchers because their research failed to find what they wanted it to find, usually meaning a link to the XMRV retrovirus (which was rarely if ever named in the reporting). This led to a series of bigoted opinion pieces, notably one by Rod Liddle, and a fawning interview in the Times with Simon Wessely, who was also given a space for an article in the Spectator. Almost no space was given for a right to reply by patients or anyone else giving the other side of the story (the Spectator being an exception, which printed two substantial letters in reply to Wessely). Invest in ME filed a complaint with the Press Complaints Commission, a “self-regulation” body funded by the companies which run the papers themselves, which published its decision on the 18th; you can find the PDF here. The short version is that in every case, they either found no breach of any code, or refused to make any decision.

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Posted in M.E., Media | Leave a comment

Likening ME to AIDS is irresponsible

Picture of Hillary Johnson giving a speech at the Invest in ME Conference in London, May 2011I recently received my copy of the conference DVDs from Invest in ME, which had its annual conference in London in May, but held up distribution of the DVDs because one of the presentations contained clinical trial findings which are still under embargo (they do not appear to be taking new orders for the DVD set at present, probably for this reason). Of the talks I have already watched, there is an excellent, 30-minute talk by David Bell, a physician whose practice in Lyndonville, New York, treated many of the victims of an outbreak of ME in the 1980s; he talked about “health identity confusion”, in which patients who are still very ill might report that they are in good health as they have adapted to their changed life circumstances, and might be carrying on what they consider productive lives mostly from bed, as does one patient he discussed. This kind of behaviour may skew the outcome of studies, and indicate that a proportion of ME sufferers are healthier than they really are. However, there was one talk that needs a serious answer, as it made claims which sound a lot like irresponsible scaremongering.

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Posted in M.E. | Tagged , , | 24 Comments

BBC management to gut local radio

Picture of Broadcasting House in London, home of BBC LondonMy favourite radio station is BBC London. I’ve been listening to it for years, and while there are a fair few presenters I don’t like, there are some highly interesting programmes about local issues and local interest, like Robert Elms’s show on weekday afternoons, which have kept me listening for a number of years, particularly during the time I’ve spent driving for a living in London. A recent proposal by the BBC’s trust, which is aimed solely at saving money as the licence fee is to remain at £145.40 for the next five years, to pay for the Welsh language broadcaster S4C as well as the World Service as well as its current responsibilities, would see localised programming ended for much of the schedule, and would no doubt see a number of much-liked programmes disappear for good.

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Posted in Media | 3 Comments

Young adult marriage visa ban: unjust, now unlawful

Picture of the British Supreme Court in Parliament Square, LondonSupreme Court overturns non-EU young spouses ban (from BBC News)

The UK Supreme Court has ruled that a government ban on British citizens bringing spouses under the age of 21 from outside the EU to live in the UK, introduced under the Labour government ostensibly to prevent forced marriage, is unlawful. The court heard that two couples, one including a husband from Chile and the other with a bride from Pakistan, had been separated or forced to live outside the UK for extended periods, in one case resulting in the British spouse losing a university place. There was also a challenge from a British-Canadian couple, who were separated as the Canadian wife could not come to live in the UK and the British husband could not find work in Canada.

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Posted in Civil liberties, Gender, Terrorism, Think tanks | 1 Comment

Some impressions of the new Ubuntu

Screenshot of GNOME Shell with this entry in a QTM windowRecently I installed the new version of Ubuntu (actually, it’s still in development as the final version is only due out on the 13th). It was sort of forced on me in one case, because I had installed the backported new version of KDE on my desktop computer and found that it had become a crashy mess, but I installed an earlier version (the October release from last year, codenamed Maverick Meerkat) and found it worked very well. Unfortunately, since then, major changes have been made to Ubuntu and although this version (version 11.10, codenamed Oneiric Ocelot) is an improvement on the release before it (from April, codenamed Natty Narwhal), it still has not reached the level of quality that was associated with Ubuntu up until last year.

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Posted in Linux | 1 Comment

Can we stay in Afghanistan for the women?

Raising hope for women in Afghanistan | World news | The Guardian

This article, by Samira Ahmed, is about how the war in Afghanistan has been framed as a “feminist experiment” and the plight of Afghan women has been referred to by various female politicians (and politicians’ wives) so as to justify the invasion and continuing occupation of Afghanistan. I recall the real reason troops were sent in being to do with the terrorists the Taliban had been foolishly harbouring, who had organised a major terrorist attack on New York and Washington. The situation for women in Afghanistan had been the case since 1996, when the Taliban took power, and had not been the reason for an invasion until then.

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Posted in War in Iraq & Afghanistan | Leave a comment

Steve Jobs’s death leaves me cold

Picture of an eMac sitting on a wooden floor under a desk next to a black Dell system boxSo, Steve Jobs, the man who invented the Mac, the NeXT box and then merged the two together, is dead. Actually I’m sure a few people helped Jobs on the way, like actual programmers and graphic designers and, well, you get it, but the tributes I heard on the radio today were beyond ridiculous: there was a guy called Geoffrey Robertson, I think, interviewed by Jeremy Vine on Radio 2, who claimed that what Jesus was to Christianity, Steve Jobs was to “tomorrow”; a letter-writer to the same programme opined that vintage Macs can be found in design museums but vintage PCs can only be found in skips; and finally, the line that three apples have changed the world: the one Eve ate, the one that fell on Isaac Newton’s head, and the one Steve Jobs invented.

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Posted in Mac | 3 Comments

British schools: the leaving age and “Apartheid”

Picture of Chris Woodhead, former chief inspector of UK schoolsChris Woodhead, the former chief inspector of British schools, has been in the news twice this week, the first occasion when he proposed that the school leaving age should be 14, so as to “give less academic students a better chance of learning a trade”, and the second in which he defended British schools against a claim that was made (by the head of a prestigious London private school, who grew up in South Africa) that parts of the UK are “sleepwalking into Apartheid” with schools in some areas being dominated by people of one background and people generally not leaving those areas (the story was in the Guardian, the Daily Mail and the Telegraph and it was on the BBC London breakfast news programme which you should be able to listen to online for a week afterwards). Woodhead also said it was “morally wrong” for private schools to sponsor academies, as the time their teachers spent teaching the academy pupils would not benefit the children whose parents paid the fees.

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Posted in Education | 6 Comments

Free Kimberley Robbins!

Picture of Kimberley Robbins in a hospital bed, with an image of Duke loaded on her Mac laptopWhile I’ve been following the case of Ayn Van Dyk, the autistic girl seized from her father for ridiculous reasons in British Columbia in June and still in care (see earlier post), there has been another saga involving a person with a disability being mistreated going on at the other end of the country. Kimberley Robbins lives in Newfoundland; she has been blind since birth and incurred a spinal cord injury in 2004, after suffering an acute case of transverse myelitis (an inflammation of a section of the spinal cord, in her case the C6 area). Since then, after getting out of rehab in 2005, she has lived independently (quite rare for someone with that level of injury), but has been dealing with increasingly severe spasms, which earlier this year put her in hospital and then another rehabilitation unit at the Dr Leonard Miller Centre in St John’s, the provincial capital; she has documented her experiences in the unit here and more recently here. Her experience recently made the local papers, which can be read anywhere in the world on their website.

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Posted in Disability | Leave a comment

Feel the autism?

OK, so after posting that long article criticising disabled and/or autistic self-advocates for forgetting how hard it was to raise a profoundly disabled or severely autistic child, I had this tweet today:

Yesterday,a daycare child woke from nap & fingerpainted w/contents of diaper. Thought of parents of kids with #autism. I #pray for you! #FAY

I responded by asking why we all needed to know that. The person tweeted through the account @AynComeHome, which is for announcing developments in the Ayn Van Dyk case in Canada (see earlier post). I wondered why that had been broadcast when it seemed to have no relevance to Ayn’s own case, as I had not heard it reported that she does what was described.

Oh, and “FAY” isn’t the child’s name — it stands for “Feel Autism Yet?”.

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Posted in Asperger's / autism | 6 Comments

Can anyone speak for all disabled people?

Picture of Katie Thorpe, who has severe cerebral palsy and profound intellectual disability, with her mother Alison ThorpeMany years ago, there lived a scholar who asked an old rabbi what could be learned from the Talmud. The rabbi told him of two men who fell down a chimney. One arrived at the bottom dirty, while the other arrived clean. “Is that the lesson of the Talmud?” the scholar asked. “No,” replied the rabbi, “listen to me: the dirty man looked at the clean man and thought himself clean.” “Is that the lesson of the Talmud?” asked the scholar. “No,” replied the rabbi, “for the dirtied man looked at his own hands and on seeing them sooty knew he’d been dirtied.” “This then is the lesson of the Talmud?” asked the scholar. “No,” said the rabbi. “Then what am I to learn from the Talmud?” asked the scholar. The rabbi told him: “You will learn nothing from the Talmud if you start by believing that two men can fall down a chimney and not both be dirtied.”

I read the above many years ago in a book called City of Gold by Len Deighton, a spy novel set in Cairo (Egypt) during World War II. I’m not sure where Deighton himself got it from, but it seems relevant to a discussion on disability and identity which has been running on three blogs I read fairly recently, first at Bad Cripple (guest-posted also at Journeys with Autism), then at Life with a Severely Disabled Child, then back to Bad Cripple again. Peace is a paraplegic who incurred a spinal cord injury from a neurological illness 30 years or so ago; Claire Roy, the author of the second blog, is the mother of a teenage daughter who suffered severe brain damage when she had a stroke at age 6 (she explains how this affects her here). Peace writes the disability is an important part of his identity, that he cannot imagine life without it, never thinks about the possibility of curing his injury and that “such thoughts are for others; people who without question accept that walking is the only means of locomotion”. He also insists that life for people with disabilities such as his is difficult because:

Our physical and social environment are designed for bipedal people who learn at a prescribed rate. Deviate from the norm in American society and you will see the dark underbelly of a puritanical society. I know all about this because I have seen it for the last 30 years.

Claire Roy counters that she does, nowadays, identify her daughter in a group of others as “the kid in the chair” because that is her most identifiable characteristic, but does not want it to be part of Sophie’s identity, and she is not even sure how Sophie sees herself because she always refers to herself in the third person. She would certainly fix her daughter’s disability if it were possible, and rejects the idea of her disabilities as gifts:

Who she is, her identity, is, to me, more about her personality, her little quirks and preferences. Her disabilities, on the other hand, stifle her, stifle who she is. She cannot write for long because it will hurt her arm. She cannot express herself because she can’t catch hold of the words. She cannot put together a plan for her life because she is completely dependent on others and can’t even think in those terms.

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Posted in Disability | 5 Comments

Remember Kercher, prosecutor tells jury

Picture of Meredith Kercher, who was murdered in Italy in 2007BBC News - Amanda Knox appeal: Jury told to remember Kercher

Italian prosecutors have urged a jury considering an appeal by two convicted murderers of British student Meredith Kercher to remember her family. …

Before a packed courtroom, prosecutor Giancarlo Costagliola denounced the media campaign that made “everyone feel like the parents” of Knox and Sollecito.

“As you make your decision, I wish that you jurors feel a little bit like the parents of Meredith Kercher, a serious, studious girl whose life was taken by these two kids from good families,” he said.

This statement is obviously an attempt to appeal to the emotions of the jury (I wasn’t aware that appeals had juries; they don’t in the UK, where trials can be held with a jury but all appeals are held by panels of judges) and treat the case as some sort of judicial theatre in which the jury is an audience. The feelings of the Kercher family are irrelevant here, because what is being decided is not whether Amanda Knox and her co-defendant Raffaele Sollecito serve fifteen years, thirty or more, but whether they are guilty at all, or totally innocent. The reason we don’t “consider the victim” (or the family of the victim) in such cases is because they are not the ones at risk of a miscarriage of justice; the defendant is.

If the Kerchers choose to continue believing that Knox and Sollecito are guilty in the fact of much evidence that they are not, that should not persuade anyone that they are in fact guilty. The judge should have intervened, stopped his rhetoric and told the jury to ignore it.

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Posted in Crime, Europe | Leave a comment

The human and financial cost of ME

Picture of a crab apple tree with a red-brick church building behind it, planted in memory of Lynn Gilderdale. Today (20th Sept 2011) would be her 34th birthday.Last week, the University of Bristol published a study partly funded by Action for ME which highlighted the economic cost of ME and “Chronic Fatigue Syndrome” (more accurately, the cost of illness to service users at NHS ME and chronic fatigue services). The abstract is here and the full study is available as a provisional PDF (a final PDF will be available at a later date) and the authors include the Bristol paediatrician and AYME medical advisor Esther Crawley. The productivity costs of these illnesses were calculated to be £22.3m for men (equivalent to £44,515 per patient) and £26.9m for women (equivalent to £16,130 per patient).

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Posted in M.E. | Leave a comment

Flather’s attack on Muslims is not brave

Picture of Baroness Shreela FlatherUK immigration: Polygamy, welfare benefits and an insidious silence | Mail Online

This article by former Tory peer, Baroness Shreela Flather, appeared in the UK Daily Mail on Friday, and consists of a broad-brush attack on Pakistani and Bangladeshi Muslim “migrants” (note: not all — perhaps not even most — Muslims of Pakistani or Bangladeshi origin in the UK are migrants at all), accusing them of maintaining multiple families through polygamy so as to milk the state for benefits. The trick, supposedly, is to marry one wife under Islamic law (i.e. not officially) and another officially, so that one wife (and her children) gets benefits as a single parent, while another gets social security as a married couple.

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Posted in Islamophobia, Media, Secularism, Windbags, Women | Tagged | 3 Comments

Government planning individual voter registration

Shocked MPs told electoral plan could remove 10m voters | Politics | The Guardian

The Government is planning to introduce voluntary individual registration for coming elections alongside massive changes to electoral boundaries, to replace the current system of household registration in which it is mandatory to co-operate with electoral registration officers (EROs) and supply accurate information. Samira Shackle covers the story on the New Statesman’s website (the Guardian, above, is the only newspaper to cover it), and both note that it is likely to disenfranchise poorer voters who are already more likely to be politically disengaged already, and thus benefit the Conservatives (or perhaps the Liberal Democrats) who receive more votes from better-off voters.

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Posted in Politics | 1 Comment

Is £500,000 worth it for Dahl’s hut?

Picture of Roald Dahl's hut surrounded by treesA shrine for Saint Roald and Saint Rowling (from today’s Guardian)

Roald Dahl’s family is seeking £500,000 (US $790,300 at current rates) to transfer the hut in which the late author wrote some of his famous children’s novels to the grounds of the Roald Dahl Museum, which has a page dedicated to the appeal here. The family claim that the hut is in a state of “accelerating decay” and might not survive the winter; another report says that nobody in the family has been into the structure in Great Missenden, Buckinghamshire, for some time. There is some difference over where the money is expected to come from, with much expected to come from “trusts and foundations” but it has also been suggested that a public contribution will be requested.

Roald Dahl’s novels were some of my favourites as a child, and I read all of them up as far as Matilda. I never read Esio Trot or The Giraffe and the Pelly and Me but I read all the earlier ones. I remember reading of his death in 1990 when away at boarding school, and saw it tucked away in a broadsheet newspaper (the Telegraph I think) and recall noticing the distinct lack of any discussion of the event. Still, I cannot justify spending public money on maintaining the hut at a time like the one we are in, and question whether any charity money being spent on it could not be better spent on something else, like providing books for children. The Dahl family clearly did not think it was so valuable until now, when they saw an opportunity to raise publicity and money and attract people to their museum. They should really have acted years ago, rather than letting it sink into ruin by not touching it for more than twenty years after Dahl died.

Image source: Shedworking.

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Posted in Arts | 1 Comment

Facebook troll jailed — why can’t people be adults?

Picture from 1958 of the crashed aeroplane on fire at MunichBBC News - Reading man jailed for dead girl 'trolling' insults

A man has been jailed for 18 weeks for posting insulting messages on Facebook pages dedicated to young people who had died, in one case a 15-year-old girl who had committed suicide in Reading after being bullied. He posted other tasteless messages on various forums related to young people who had died tragic deaths. The 25-year-old man suffers from alcoholism and Asperger’s syndrome.

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Posted in Asperger's / autism, Civil liberties | 2 Comments

Eurabian nightmare

Front cover of the Spectator from November 2005, headlined 'Eurabian nightmare', with a crescent linking various cities and a star at LondonThe end of Eurabia - FT.com

Ths image is from the Spectator, the British political magazine, and represents what passed for journalism on the European and American right during the post-9/11 era. The occasion for this was a series of riots involving youths of Middle Eastern origin in several cities in northern Europe. As you might notice, the crescent runs from Nantes (wrongly labelled as Rennes which is inland), passes at its thickest point through southern Germany, where there were no riots, and ends somewhere near similarly unaffected Arbroath, on the Scottish east coast. “Eurabia” refers to the theory that Muslims were collaborating with “useful idiots” on the Left to somehow destroy European civilisation; some outbreaks of violence among the youth, most of them not particularly religious, was the chief evidence in this case. The editor of the magazine at this time was none other than Boris Johnson, then a Conservative MP and now mayor of London. The contributors include some of the worst contributors to this literature, including Mark Steyn and Patrick Sookhdeo.

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Posted in "Eurabia", Media, Terrorism, Windbags | 2 Comments

Blood donation rules: no sense then or now

Picture of a man giving bloodOn Thursday it was announced that the rules governing who can give blood in the UK was changed; previously, any man who had ever had sex with a man was permanently excluded; the new rules state that he is banned for a year. This rule was put in place in the 1980s to curb the spread of HIV through blood donation; today, greater awareness of safe sex and better methods of HIV detection mean the lifetime ban is no longer necessary. A permanent ban still applies to former prostitutes and intravenous drug users. Meanwhile, another controversy continues over whether those who suffer from ME should be excluded, and why a ban has only recently been introduced. (Note: sexual acts discussed in the full entry.)

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Posted in Health, M.E. | Leave a comment