Category: M.E.

Yes, but do they have ME?

Unidentified Chronic Fatigue Syndrome/myalgic encephalomyelitis (CFS/ME) is a major cause of school absence: surveillance outcomes from school-based clinics (at BMJ Open) This morning several news sources reported that a study had been published by...

How severe is severe?

In July 2011, a new set of criteria for diagnosing ME were published, under the authorship of most of the major researchers involved in the ME or “CFS” field (Byron Hyde is absent, however)....

PCC throws out complaints over ME reporting

Over the past summer, a number of newspapers and broadcast outlets claimed that some so-called ME researchers had been receiving death threats from so-called militant ME sufferers, such that some had abandoned the field,...

Likening ME to AIDS is irresponsible

I recently received my copy of the conference DVDs from Invest in ME, which had its annual conference in London in May, but held up distribution of the DVDs because one of the presentations...

The human and financial cost of ME

Last week, the University of Bristol published a study partly funded by Action for ME which highlighted the economic cost of ME and “Chronic Fatigue Syndrome” (more accurately, the cost of illness to service...

Vivint vote appeal, ME and mental illness

Yesterday it was announced that the Whittemore-Peterson Institute in Reno, Nevada had won a long-running campaign for a $100,000 grant from the Vivint home security company (formerly APX Alarm) called the Vivint Gives Back...

The Times, Wessely and the ME community

A little over a week ago I responded to accusations that people in the ME community were threatening scientists who were involved in “valuable” research into the cause and treatment of ME, because their...

Anti-ME brigade play victim

On Friday morning, the BBC’s Radio 4 ran a feature on the supposed intimidation of scientists working on “chronic fatigue syndrome, also called ME” which is claimed to be driving people away from researching...

Hustvedt’s ignorance over “CFS”

Acting up: is hysteria all in the mind? | Life and style | The Guardian Asti Hustvedt has written a large book on the “celebrity” hysterics of 19th-century Paris, whose doctor, Jean-Martin Charcot, paraded...

Trailer for new film about severe ME

This is a trailer for Voices from the Shadows, a film about severe ME by Natalie Boulton, who edited the book Lost Voices (reviewed by me here), and her son Josh Biggs (her daughter,...

ME Awareness month round-up

I know, ME Awareness week was a couple of weeks ago and work took too much out of me back then. However, the month ends in just under two hours (British time) and I...

ME Awareness: Emily Collingridge’s appeal

This article is an open letter by Emily Collingridge (right), who is best known as the author of Severe ME/CFS: A Guide to Living, a guide for patients and those involved in caring for...

ME Awareness Week: the dangers of GET

I’ve seriously injured a patient — head of nursing at University of Ottawa — because she insisted on the Graded Exercise Therapy programme. We put her in the physiotherapy hospital, which is a great...

No more Yuppie Flu!

This post is part of Blogging Against Disablism Day 2011. I was originally inspired to write this post when I saw Eamonn Holmes’s bumbling performance while interviewing Kay Gilderdale, whose daughter Lynn committed suicide...

No, ME is not polio

Yesterday I was having a discussion on Facebook with an anti-vaccinationist who referred me to various websites which outlined the various supposed conspiracies that have gone on to keep parents in the dark about...

PACE trial: What’s fear got to do with it?

Study finds therapy and exercise best for ME (from the Guardian, 18th February) On Thursday, the results of a trial of various supposed methods of treating what the authors insist on calling Chronic Fatigue...