Category: M.E.

Not exactly medical journalism

Earlier this week the Panorama documentary featuring Kay Gilderdale, titled “I Helped My Daughter Die”, won the Medical Journalists’ Association’s “best broadcast TV” award at their Winter Awards 2011 (the MJA don’t actually announce...

ME, mental health and victim blaming

Yesterday afternoon there was a debate on ME at Westminster Hall, an annex to the House of Commons, whose main participants were Ian Swales (Lib Dem, Redcar) and the Tory health minister Paul Burstow....

Why the rush to open the “ME files”?

Last week, the Countess of Mar, a long-standing advocate for the ME cause in the UK’s House of Lords, asked a question regarding why public records on ME dating back to the 1980s and...

The perils of suspicion

Last weekend I witnessed an ugly incident on Facebook, which led to a relationship breaking up and the two erstwhile partners both retiring from the site (and Twitter) over accusations that seemed flimsy at...

Casualty and ME: turning reality on its head

I got a reply from someone at the BBC Complaints department, which (much like the response to my earlier complaint about male rape jokes) wasn’t so much an apology as a self-justification. It included...

How can this STILL be happening?

Parents tell how every day is a battle to care for teenager struck down with chronic fatigue syndrome – The Daily Record "Chronic fatigue syndrome", in this context, is M.E. (the symptoms described are...

When is an apology meaningful?

Earlier today I took part in a Facebook discussion about "apologies", in the context of the British government's decision to prohibit blood donations from people who had, or ever had, M.E., in which someone...

Daily Mail doctor notices sky is blue

This actually happened a couple of months ago, but I thought I’d comment on it now since it appeared again in Invest in ME’s August newsletter (top article): a doctor named Martin Scurr who...

M.E. and the ethics of testing on sick kids

This past week, two major British M.E. organisations, the Young ME Sufferers Trust and the ME Association, issued a joint statement ([1], [2]) condemning as "unethical" a study, scheduled to start in September, of...

Which of these women looks sick?

ButYouDontLookSick.com is a website by a woman with lupus (she wrote the Spoon Theory I referred to in a previous post). In her biography, she says that, despite suffering a wide range of symptoms...

Review: Lost Voices

Lost Voices is published by Invest in ME, a British charity which concentrates on promoting research into the causes of, and a possible cure for, the debilitating neurological disease, myalgic encephalomyelitis (ME); they have...

Wakefield, vaccines and ME

Earlier today, Dr Andrew Wakefield, who published a study in the Lancet, a major British medical journal suggesting that the triple vaccine against measles, mumps and rubella (MMR) might be a cause of autism,...

Jeremy Vine meets Kay Gilderdale again

This week is ME Awareness Week ([1], [2]), and a number of media appearances and articles have been scheduled, including two appearances from Kay Gilderdale (on Radio 2 today and, allegedly, on GMTV tomorrow...