Category Archives: M.E.

Which of these women looks sick?

Posted on 10th July, 2010 by

ButYouDontLookSick.com is a website by a woman with lupus (she wrote the Spoon Theory I referred to in a previous post). In her biography, she says that, despite suffering a wide range of symptoms over the years, she had been … Continue reading →

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Posted in Health, M.E. | 9 Comments

Review: Lost Voices

Posted on 1st July, 2010 by

Lost Voices is published by Invest in ME, a British charity which concentrates on promoting research into the causes of, and a possible cure for, the debilitating neurological disease, myalgic encephalomyelitis (ME); they have organised conferences in London addressed by … Continue reading →

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Posted in Health, M.E., Reviews | 2 Comments

Wakefield, vaccines and ME

Posted on 24th May, 2010 by

Earlier today, Dr Andrew Wakefield, who published a study in the Lancet, a major British medical journal suggesting that the triple vaccine against measles, mumps and rubella (MMR) might be a cause of autism, was struck off the British medical … Continue reading →

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Posted in Asperger's / autism, Health, M.E., Media | 6 Comments

Guardian on ME and retroviruses, and other press coverage

Posted on 15th May, 2010 by

First of all, this past week has been ME Awareness Week as I mentioned several times in my last article. This fact has got lost in all the election talk as might have been expected, although I’m sure many in … Continue reading →

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Posted in Health, M.E., Media | 2 Comments

Jeremy Vine meets Kay Gilderdale again

Posted on 11th May, 2010 by

This week is ME Awareness Week ([1], [2]), and a number of media appearances and articles have been scheduled, including two appearances from Kay Gilderdale (on Radio 2 today and, allegedly, on GMTV tomorrow morning) as well as from Criona … Continue reading →

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Posted in Health, M.E., Media | Tagged , , | Leave a comment

Me on the Late Show: transcript

Posted on 11th April, 2010 by

Yesterday (Saturday) morning, I got to speak on the Late Show with Joanne Good on BBC London (94.9FM). She was doing a feature on bad comedy, specifically an incident in which Frankie Boyle, a former panellist on the BBC TV … Continue reading →

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Posted in Appearances, Arts, Health, M.E. | Tagged , , | 6 Comments

Why don’t people abandon support groups with bad policies?

Posted on 9th April, 2010 by

Recently I read an article by Jodi Bassett, a campaigner on ME issues who suffers from the severe form of that illness, on the Planet Thrive website (it’s also posted on her own site) entitled Myalgic Encephalomyelitis: The shocking disease. … Continue reading →

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Posted in Health, M.E. | 2 Comments

Ricky Gervais on ME, and other bad comedy

Posted on 4th March, 2010 by

Yesterday I had a brief exchange of tweets with Organica, who told me of her enthusiasm for the British comedian, Ricky Gervais, best known for writing and starring in The Office, his stand-up shows, and most recently the critically very … Continue reading →

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Posted in Arts, Health, M.E. | Tagged , | 21 Comments

Gilderdale, Schiavo and models of disability

Posted on 15th February, 2010 by

The other day I had a debate with Clair Lewis, a British disability activist and blogger, about the public reaction to the Kay Gilderdale case. Lewis was appalled by the show of public sympathy towards Kay and the way she … Continue reading →

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Posted in M.E. | Tagged | 7 Comments

The real value of online friendships (Hadley Freeman revisited)

Posted on 8th February, 2010 by

At the end of December there was an article by Hadley Freeman in the Guardian, characterising the past decade as a decade of fakery: fake science, fake politics and fake friendships connected only by Facebook. At the time, I criticised … Continue reading →

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Posted in M.E., Media, Tech | Tagged , | 4 Comments

Panorama and other media coverage of the Gilderdale affair

Posted on 2nd February, 2010 by

I’ve been following the media coverage of the Lynn Gilderdale attempted murder trial with some interest as I found it quite emotionally affecting, and have found most of the coverage to be sympathetic to Lynn’s mother, Kay Gilderdale, who was … Continue reading →

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Posted in Health, M.E., Media | Tagged , , , , | 4 Comments

The differences between the Inglis and Gilderdale murder cases

Posted on 28th January, 2010 by

Earlier this week, a mother named Kay Gilderdale was acquitted of the attempted murder of her daughter Lynn in December 2008. Lynn Gilderdale had been bed-bound since the age of 14 with severe ME (myalgic encephalomyelitis). She was paraplegic (earlier … Continue reading →

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Posted in Crime, M.E., News | Tagged , , | 5 Comments